We could take it further but would that be the right thing to do, would there be more criticism?”The decision denying travel to Ital came despite doctors representing Speaking at the Court of Appeal late Wednesday in London, Justice McFarlane rejected the challenge by Alfie’s dad. TOM Evans and Kate James, Alfie's parents, lost their latest legal bid to fly the ill tot to Italy for treatment as doctors say he can no longer be helped. It’s not a miracle, it’s a misdiagnosis.
They had previously lost a challenge at the Court of Appeal and also failed to have the decision overturned at the European Court of Human Rights as well as the Supreme Court.Alfie's life support was turned off on the evening of Monday, April 23 - but the little boy has been breathing unassisted since then.His parents will now challenge a High Court ruling which has prevented them from taking their son to Italy for treatment.Alfie is in what doctors call a 'semi-vegetative state' with a degenerative neurological condition. These are external links and will open in a new windowThe parents of seriously ill toddler Alfie Evans are to meet doctors to discuss taking him home, his father has said.The Court of Appeal upheld a ruling on Wednesday preventing the 23-month-old from travelling abroad after life support was withdrawn. The couple consistently placed pressure on the justice system in a bid to keep Aflie alive. They avoid us. But his parents, Tom Evans, 21, and Kate James, 20, refused to agree.
Doctors at Alder Hey who had cared for him since the age of 7 months wanted to remove him from the ventilator and draw up a palliative care plan. Alfie Evans’ parents will meet with staff from Alder Hey Children’s Hospital today to request permission to take Alfie home. Doctors at Alder Hey told his mum and dad that the tot wouldn't make it but he fought back after the infection and started to breathe on his own.However, he then caught another chest infection and began to have more seizures so was again put on a ventilator.Some medical experts believe Alfie may have a mitochondrial condition, which was what Charlie Gard had.
Doctors at Alder Hey who had cared for him since the age of 7 months wanted to remove him from the ventilator and draw up a palliative care plan. Mitochondrial DNA depletion syndrome (or MDS as it is known) refers to a group of disorders that cause affected tissues to suffer from a significant drop in mitochondrial DNA.MDS causes progressive muscle weakness and brain damage and is extremely rare. "Steven Woolfe, Member of the European Parliament for North West England, is launching a campaign for "Alfie's Law" to give parents of terminally-ill children more say in end-of-life hospital care.The campaign claims that, while recognising the dedication of doctors and nurses treating sick children, parents also have "moral rights" about the care of their loved ones.He said: "The cases of Charlie Gard, Ashya King, and now Alfie Evans, show a dangerous trend of public bodies depriving parents and families of the right to make decisions they believe are in the best interests of their children. 24 April 2018.
"If the meeting doesn't go well today, well then I'll go back to court. He’s been off a ventilator for three days now and there’s been no deterioration.
The hospital has seen several protests in recent weeks organised by a campaign group calling itself "Alfie's Army".
“We would do everything we can to keep Alfie home, comfortable and happy.”“Today, we’re going to have a meeting with the doctors at Alder Hey and we’ll now start asking to go home. (Instagram Alfie's Army page) "He did not rule out further legal action and said the family has "appeals to explore". Alfie Evans was taken off life support on Monday evening
"Mr Justice Hayden said on Monday that Alder Hey would discuss the next steps for Alfie with his parents to "explore" the options of removing him from intensive care either to a ward, a hospice or his home.The hospital's doctors and independent medical experts agree there is no cure for the boy's rare, undiagnosed degenerative neurological condition.Roger Kiska, a solicitor at the Christian Legal Centre which is part of the legal team supporting Mr Evans, disagrees and told Radio 4's Today programme the legal battle was not over and "there are other options".Mr Evans said: "All I ask for now is for this meeting to be a positive one and I hope to have Alfie, on the terms of mine and Alder Hey, to be home within a day or two".
Some people say it’s a miracle – it’s not a miracle its a misdiagnosis.”“There’s no miracle about this – I’ve had a feeling about Alfie’s condition for a long time now and I’ve always said I struggle to believe it’s a neurodegenerative disease.
Alfie’s parents had hoped to take the little boy to the hospital in order to potentially get treatment that could help his rare degenerative neurological condition.Today, Alfie Evans’ father Tom Evans says his son’s still fighting and doing well 36 hours later.He said: ‘He is doing as well as he can, he is fighting.
His family claim they were told their son was 'lazy and a late developer'.In December 2016 he was placed on life support after catching a chest infection which caused seizures.Alfie's parents are called Kate James, aged 20, and Tom Evans, aged 21. They have acted so aggressively towards us,” he said.
Tom Evans, 22, and Kate James, 21, welcomed Thomas four months after Alfie …
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